Tag Archives: Down Syndrome

Stipend Program for Illinois Families to Attend Conferences

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The Arc logoDid you know that the Illinois Council on Developmental Disabilities has a stipend program that pays for Illinois families to attend conferences?

The Consumer Stipend Program funded by the ICDD and managed by The Arc of Illinois helps individuals and their family members attend educational conferences that discuss topics focused on intellectual and developmental disabilities.

The program can assist financially with the many expenses involved with attending a conference, including but not limited to: registration, gas, hotel, childcare and meals.

This goal of this program is to make sure self-advocates and family members have the availability to information so that they are able to make positive changes in their lives and be the best advocates they can.

We would appreciate if you could share this information with individuals with developmental/intellectual disabilities and their families.

Below are some examples of types of conferences that we have provided funding for:

Autism

Cerebral Palsy

Down Syndrome

PECS

Fragile X Syndrome

Rett Syndrome

Williams Syndrome

Fetal Alcohol Spectrum Disorders

DUP15q Conference

Batten Disease

Transition Conference …and many more!

Click here to for more details about applying for the
Consumer Involvement Program

 
Please contact Lee Ann at 815-464-1832 or leeann@thearcofil.org with any questions.
This is a great opportunity for self-advocates and family members to attend conferences or trainings that they would not otherwise be able to attend.

T

Volunteers Wanted for a Research Study Family-Based Sexuality Education Training For Parents of Young Adults with Down Syndrome

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Volunteers Wanted for a Research Study Family-Based Sexuality Education Training For Parents of Young Adults with Down Syndrome

The purpose of this study is to investigate the effectiveness of a family-based sexuality curriculum for parents of young adults with Down syndrome (DS) on improving the self-efficacy and attitudes around sexuality and healthy relationships for young adults with DS as well as increase the parent-child communication on sexuality topics.

Who’s Eligible?

The Adult Down Syndrome Center is offering a free training for parents of young adults (ages 20-30) with Down syndrome. Interested participants must be able to communicate in English.  Compensation will be provided upon full completion of the study.

What’s Involved?

Participants must be able to meet three (3) times over a four (4) week time frame for three (3) hours each visit (9 AM-12 PM). A follow-up mailed survey must be completed 1 month after the final training. Interested participants will complete a follow-up phone survey 2 months after the training.

The study will be held at the Adult Down Syndrome Center, 1610 Luther Lane, Park Ridge, IL 60068 from 9 AM-12 PM.

Please select from the following date options:

Option 1: April 22nd, April 29th, and May 13th

Option 2: June 17th, June 24th, and July 8th

Option 3: August 5th, August 12th, and August 26th

Option 4: September 9th, September 16th, and September 30th

For more information, please contact the primary investigator, Katie Frank, at (847) 318-2331, or Katherine.frank@advocatehealth.com.

African American Parents of Children with Autism Spectrum Disorders (ASD) Needed for Research on Experiences Accessing Services

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African American Parents of Children with Autism Spectrum Disorders (ASD) Needed for Research on Experiences Accessing Services

Jamie Pearson is a doctoral student in Special Education at The University of Illinois at Urbana-Champaign. She is looking for participants for an exciting research project that will focus on the experiences of African
American parents gaining access to services for their children who have ASD. Below is a description of the study.

Title of the Project: African American Parents’ Experiences Accessing Services for Children with Autism Spectrum Disorders

About the Project: As a participant, you will complete two 10-minute surveys and be interviewed face-to-face for approximately one hour. This will help us to understand of the experiences of African American Families when accessing services in school and outside of school for children with ASD. We believe that your experiences will help to inform the practices
in schools and homes, particularly for children of color with autism.
Potential Participants: Please consider participating in this study if:

1. You are an African American parent or caregiver of an African American child who has a primary diagnosis of autism spectrum disorder,

2. Your child is in grades K-5 at a public school in Illinois and qualifies for special education and related services, AND

3. Your total yearly family income is more than $27,910
In appreciation for your time, you will receive $50 for participating in this study.

For more information please contact: Jamie Pearson, jnpears2@illinois.edu, 217-333-0260 Hedda Meadan, meadan@illinois.edu, 217-333-0260

 

 

SIBSHOP IS FOR AGE 7 to 12.

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sibshopOUR SIBSHOP IS FOR AGE 7 to 12.

Sun, October 19, 2014 10:00AM to 1:00PM (Central) 
Lunch will be served!

Frequently Asked Questions about Sibshops

What are Sibshops? For the adults who run them and for the agencies that sponsor them, Sibshops are evidence of their loving concern for the family member who will have the longest-lasting relationship with a person who has a disability. However, for the kids who attend them, Sibshops are pedal-to-the-metal events where they will meet other sibs (usually for the first time), have fun, laugh, talk about the good and not-so-good parts of having a sib with special needs, play some great games, learn about the services their brothers and sister receive, and have some more fun.
Who attends Sibshops? Sibs, of course! Most Sibshops are for sibs of kids with developmental concerns. Increasingly, Sibshops are being offered for brothers and sisters of kids with health concerns and we’re beginning to see Sibshops emerge for sibs of kids with mental health concerns.

UNDERSTOOD: National Center for Learning Disabilities

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National Center for Learning DisabilitiesUNDERSTOOD

The National Center for Learning Disabilities is due to launch a new online tool for parents:

Understood is part of a bold new plan to support parents of children with learning and attention issues. Through research and interviews with thousands of parents, we have learned a lot about what people need to help their kids thrive at home, at school and in life. We developed Understood with that in mind.

Here’s just some of what you’ll find on Understood:

  • Personalized resources—all you have to do is tell us what’s important to you and your child
  • Over 1,500 searchable articles, infographics, slideshows, quizzes, and videos, with more added every day
  • State-of-the-art technology that allows you to experience the world through the eyes of children with dyslexia, dysgraphia, dyscalculia, ADHD and executive functioning issues
  • Daily opportunities to connect with experts and get your questions answered
  • A community of parents and experts, creating a safe place to ask and answer questions
  • Tools to help navigate daily parenting challenges, find the technology that’s right for your child, choose a school and more

Visit www.ncld.org for more information.

 

 

FAMILY & SCHOOL PARTNERSHIP FORUMS

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FAMILY & SCHOOL PARTNERSHIP FORUMS to learn about CPS’ Join us at the FAMILY & SCHOOL PARTNERSHIP FORUMS to learn about CPS’ Office of Diverse Learner Supports & Services (ODLSS)

SATURDAY, OCTOBER 25, 2014
Chicago High School for Agricultural Sciences
3857 W. 11th Street, Chicago IL
FREE PARKING

SATURDAY, NOVEMBER 15, 2014
Northside College Prep
5501 N. Kedzie Ave., Chicago, IL
FREE PARKING/Street parking

TRANSITION: WHAT’S NEXT 101 PARENT TRAININGS 

On behalf of the Office of Diverse Learner Supports and Services (ODLSS) Transition department, we want to invite you to attend the What’s Next 101 (WN101) Parent Modules taking place this school year.
We are excited to present students and families with information pertaining to Transition related topics that will assist Diverse Learners in transitioning to life after high school. WN101 is a series of parent modules focusing on pertinent Transition related information.
We strongly encourage parents to attend each training taking place nearest to your home with the end result being that students and families complete the modules in its entirety.

All sessions will be from 5:00 – 7:00
For additional information and to register for these important workshops, click below/Para registrase favor de visitar
https://docs.google.com/a/cps.edu/forms/d/1nXPEC1GLGbG7dHx57F84LgGKrPeEgcV1a0CAjxNe6Rs/viewform

NORTH SIDE LOCATION Sullivan High School, Social Room
6631 N Bosworth Ave,
Chicago, IL 60626
Dates: October 16th, November 6th, February 12th & May 14th

CENTRAL LOCATION *new location
Brown Elementary School
54 N. Hermitage Ave
Chicago, IL 60612
Dates: October 23rd, November 13th, February 19th, & May 21st

SOUTH SIDE LOCATION
Colman
4655 S. Dearborn
Chicago, IL 60609  Lab 101
Dates: October 30th, November 20th, February 26th, & May 28th

Jobs Galore II” Fair for People with Disabilities -August 12

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Jobs Galore IIChicago Lighthouse Teams with MOPD to Host August 12th “Jobs Galore II” Fair for People with Disabilities

In an effort to boost employment prospects for people with disabilities and Veterans, particularly those who are blind or visually impaired, The Chicago Lighthouse is joining forces again with the Mayor’s Office for People with Disabilities (MOPD) to host a “Jobs Galore III” Fair on Tuesday, August 12th

This event will take place from 11 am to 3 pm at the MOPD field office located at 2102 W. Ogden on Chicago’s near west side.

The Lighthouse will be pre-screening candidates for more than 100
positions, ranging from entry level to management. Included will be
call center supervisors, call center agents, mailroom processing
clerks and retail sales associates.

Candidates must be able to work with a database and navigate
through a windows environment; type a minimum of 25 words per
minute with 90 – 95% accuracy; possess basic math skills; and be
able to maintain a flexible work schedule, including days, nights,
weekends and holidays.

Seminars will be offered during the Job Fair. MOPD and Chicago
Lighthouse information will also be available.

Limited free parking is available at the 2102 W. Ogden location. The
site is also close to public transportation, including the #157 CTA bus
route and the Pink and Blue rapid transit lines. In addition, the
Lighthouse will provide shuttle service every 30 minutes between its
headquarters building at 1850 W. Roosevelt Road and 2102 W.
Ogden.

For additional information on the event, call Dominic Calabrese at
312/997-3662.

Ligas Family Advisory Council Needs Your Input.

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Arc LogoThe Ligas Family Advisory Council and PAS/ISC agencies are currently reviewing the draft changes to the Ligas Transition Service Plan Form and Ligas Transition Plan Instructions.  We are sharing them with you as well in case you or your members have comments.  We have asked for comments back by 8/8/14, but if you need more time, please let me know.

Please submit your comments to Jim Eddings (jim.eddings@illinois.gov)  by August 8, 2014

Way to Grow Support Group Meeting

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Mothers on a Mission, Inc. & West Suburban Special Recreation

FREE!!!

Location: The Town of Cicero Community Center- Room 106 & 107
Time: meetings will start Way to Grow

Support Group Meeting PROMPTLY@ 6:00pm until 7:45pm
Monday, August 18th, 2014

The Family Resource Center on Disabilities
Questions and Answers!
Back to School/Getting Prepared/IEP’s

For more information call: 708-357-4117
Español, por favor llame: Margarita or Eli at 708-656-8340

Specialized Child Care offered by West Suburban Special Recreation Association!